10.29.2012

Whew!

So Becca actually slept all night without waking me up!  I was really thankful after two nights of being woken almost every hour, but at the same time, I was a bit worried.  She came into my bathroom around 5:30 to use the bathroom, so I was relieved.  Ethan and Becca took off for the clinic around 6:45 this morning, and I waited anxiously to hear what the docs thought.

Dr. Grimley (our attending) is on service on the Bone Marrow Transplant unit this week, so he didn't want to see Becca.  Ethan, being the pushy, advocate daddy that I love, demanded to have an attending doctor see Becca.  Luckily, Dr. Stella Davies, the head of the department, stopped in to examine her.  We really like her and trust her completely.  She's kind of like a doctor version of Mary Poppins, and has the English accent to match.  When Ethan mentioned the hallucinations over the weekend, she immediately said that it was most definitely the Posaconizole.  She mentioned that it is has psychotropic properties for some kids, and the ones who experience these side effects are pretty disturbed by them.  Though the nurse practitioner and nurse looked at him like he had done something wrong by cutting off her Posaconizole dosage, Dr. Davies said that he had done the right thing.  It turns out that many kids have allergies to all of the -azole drugs (antifungal), and Becca happens to be one of them.  This makes sense, as she has had reactions to Voriconazole, Fluconazole, and now Posaconazole.  Rather than put her back on Miconazole (which is an IV drug that Becca doesn't react negatively to), Dr. Davies decided to just discontinue the antifungal medications altogether.  As long as we don't tear open any walls or expose Becca to mold spores, she thought we would be fine.

Ethan was also told that most of Becca's medications would be gone by Thanksgiving.  She'll probably continue on prophylactic antibiotics for pneumonia, but other than that, she won't have to take many oral medications.  This is great news!

Unfortunately, Becca's labs taken today showed some problems with her BUN and creatinine.  They were both pretty elevated, but Dr. Davies felt that this was most likely due to the rough weekend and Becca's dehydration as a result of vomiting, diarrhea, and little intake.  Today they gave her a bolus, and drew her labs again.  Her levels were still high, so she will need to go back tomorrow for more lab draws and fluids.  Ethan and I were relieved that she wasn't admitted, and we hope that they can get her kidneys healthy again quickly.

Overall, Becca looks and feels a ton better today!  She has eaten and had a lot to drink this evening, so I think the effects of the Posaconazole are wearing off.  Ethan and I both remarked that it was nice to have her back.  Thanks for the positive thoughts and prayers!
TK  

2 comments:

Bonnie said...

Yey! Glad to hear that Becca is back! I know how it is when they aren't themselves... it's scary and stressful! Hoping and praying that she continues getting back to her old self - no more hallucinations! I told Maya about Becca's hallucinations and Maya said, "Oh! Like me with the Ativan?" Yep! Maya was crazy psychotic on Ativan. We'll NEVER take that drug again! Take care guys! Prayers being sent your way every night!

Momto3awesomekids said...

Good news!!! :0)