We have returned from our 10-day escape to the UP, and after Becca's first fun-filled "friend" birthday party at our house Thursday with a dozen little adorable princesses, we landed back on A5S Friday around 1pm due to a fever. We were scheduled to be admitted on Monday around 11:30, so this is an unwelcome early admission. Ethan, Becca, and I all cried like babies yesterday when she spiked the fever and we realized this would be the last time at home for a LONG time. I'm sitting under the horrible blowing vent (those who have stayed here know exactly which vent I'm talking about) writing this update right now.
So far, all of the blood cultures are negative, and Becca has been fever-free since 4pm yesterday. The docs ordered Zosyn and new (to Becca) antibiotic that is an alternative to Vancomycin that is easier on the kidneys. Becca had a repeat GFR on Tuesday, and though there was an improvement in her kidney function, she definitely still has damage, so we appreciate them using this other antibiotic. She also had a full-body CT on Wednesday, and the doctors said everything looked fine.
Becca was on heavy fluids overnight (translation: she/I was up every hour to go to the bathroom), but they have discontinued them today. Though she now has a stuffy nose, I have convinced them to not do a nasal swab yet or go looking for some type of infection. In my "expert opinion," she picked up a cold/virus from either the hospital visits on Tuesday or Wednesday or from one of the princesses at our house Thursday. Because her IgG level was relatively low the last time they checked it on June 20, tonight they will give Becca IVIG to boost her antibodies prior to the bone marrow prep. If she happens to have a virus, it will help with that, too.
So, the bottom line is that we are here on A5S until Monday, when we will move over to A5N (the BMT unit). I'm looking at the positive side... at least we get to be with the folks we know and love on A5S for a couple more days before being thrown into a whole new environment with more restrictions and people who don't know Becca or us. Also, it's a good thing Becca got the fever on Friday, when the clinic was still open, so that we didn't need to come in through the ED. Finally, Lily is having fun in Michigan (again) with her cousins, Uncle Jon and Aunt Renee, and Nanna B. and Poppa, rather than being shuffled around while we are inpatient. Again, thanks for all of the prayers and positive thoughts for Becca and the rest of us... they are helping to lift us up and carry us through!
Birthday celebration at Nanna B. & Poppa's house
Snuggling with third cousin Emma
We love the manatees at the zoo
Fishing lessons with Daddy on Lake Michigamme
The Falls River - a great picnic spot
We found tons of beautiful rocks at Presque Isle on Lake Superior
Typical pic on "the rock" with a blooming Lily
Kniskern totem pole
Cabin cuddle bugs
The birthday girl, ready for the day
Presque Isle breakwall - a lot less smoky than last year
Blowing out candles on the Tangled cake
Princesses Becca and Avery