7.17.2012

IN A WORLD OF BM

This stay is not going to be the slightest bit pleasant.


We apparently are in a different hospital.  It is a cross between a hostel for shell shocked adults and a hospital for unsuspecting children.  There is one large parent lounge that houses numerous refrigerators/ freezers, all of which are packed to the gills with the stuff of the 24 families on the BMT ward.  Connected to the lounge is the communal and sole bathroom and shower facility on the ward available to parents.  We are not allowed to use the toilet or shower in Becca's room.  It all has a nice European feel and odor to it.  There are other facilities sprinkled about the hospital.  Let's just say my coffee intake is going to go down.  


Becca is starting her chemo as I write this.  God forgive us for the terrible things we are going to do to her. Forgive me for what I am going to do Him when I see Him.  


We transferred over here last night and had a great start with her first medication. She had an allergic reaction to an anti-convulsant; the reaction was manageable and short-lived but did not make our first experience feel as special as we had hoped.   


We are not expecting any major nasty side effects to start until this Friday or so.  By Monday she will very likely be flattened and feeling like total crap.  As her mucous membranes begin to break down, her mouth will begin to spawn numerous bloody ulcers that we are told are highly painful.  Other soft and sensitive areas of her lower body will also affected.  Not much can done to keep this from happening, but they will have her on narcotics and various other velvet hammers to help her manage the severe discomfort. ek

5 comments:

Bonnie said...

We are headed over to the transplant side on Wednesday. Seems we will be there with quite a few of our friends - unfortunately. Hang in there. It's good that you are preparing yourself for a bad ride, but for us, Maya actually did better in transplant then she did on the oncology side beforehand. I guess we'll see how she does during transplant #2. Sending prayers for Becca that this process goes quickly and smoothly.

Timmiera said...

So sorry to hear about these conditions Ethan. If there is ANYTHING I can do to help you, Trisha, Lily or Becca please let me know. I continue to send light and love your way.
Timmiera

Aunt Lou and Uncle Rick said...

We're sorry to hear about the rough start and the icky conditions. We'll keep praying for Becca's transplant to go as smoothly as possible. Sending lots of hugs,

Louisa and Rick

Momto3awesomekids said...

My heart aches for you all. Your words are so pure & from the heart. I'll continue to pray and if there is anything that I can do or send up to help make things more pleasant in any way, please do not hesitate to ask!

Pam's Poppin Pastels said...

My heart breaks for you guys. No one should have to go through any of this and yet there are so many children and families suffering. We all want to ask Him why? You know how many of us are here praying for you.
Peace & prayers
The Dickerts