Sorry I have not written in couple days; afternoons have been a lot more full now that Becca is feeling better. It is hard to write much when the DVD needs to be changed every fifteen minutes. "I find television very educational. Everytime someone turns one on, I go read a book." Groucho Marx.
Becca had a very emotionally charged make-over with Daddy, as her hair began to fail we talked about it and decided to shave it off. Her body pretty much began ignoring it, and it would become felted into a mat on the back of her head because it was so dry and scaled. It was also covering her pillow and getting into her mouth and eyes. She really does miss her hair; yesterday was pretty rough. Every hour or so she would sob, wishing she had her own hair again. The good news is that she is absolutely beautiful bald. I try not comment about how similar we look, but it is hard not to notice. Though she certainly does not look like a boy, it is on her mind. If anyone comes to visit, please don't mention that she got her lovely head, long eyelashes, perfect ears, and big brown eyes from her Daddy.
She has had some tummy aches and has recently developed a nagging cough. Being on a cancer ward, you are not allowed to have either without getting a list of tests on your bodily fluids, an ultra-sound of the abdomen, and talk of a sinus lavage and another CT. Sinus lavage is a bit like water boarding except you are sedated, and the person doing it is wearing white. Many of her treatments are essentially enhanced interrogation, just itemized as something therapeutic. But truly, the people caring for her here are really great. It is obvious that even the most seasoned attending gets emotionally attached to their patients and deeply cares about their comfort. We have seen many of her Docs tear up with the arrival of some good news.
Trisha and Lily are coming over tomorrow. Lily is getting to play hookey for the morning, a perk of getting all A's in her classes. KLSD, especially JFB and the PTO, has been very understanding and supportive of the situation. If I were to thank everyone and every group that has been understanding and supportive, I would be writing for a hundred years, but please know we are extremely grateful. EK