Sorry, you'll all have to endure my dry and boring writing tonight, as Ethan is spending the evening at home with Lily. I'm glad you are enjoying his humor and writing... they are two of the reasons that I fell for him so long ago.
Ethan told me on the phone this afternoon that Becca was doing really well at a PEEP of 6 and a rate of 35%, and that she would be starting on the CPAP. She was also responding to questions he was asking, working with the physical therapist, and trying to talk to him. I was so excited to see a response from her that I think I flew down the highway at 95mph! Good thing Ethan got me that fast car... even he was surprised at how fast I got here.
Finally, I am able to see those big, brown eyes again, and at last, she is interactive! She has the ability to be one of the most cantankerous little stinkers ever, but man, have I missed her! Becca was finishing up with the physical therapist when I arrived, and she noted that Becca has lost about 5% of her range of motion. Hmmm... doesn't seem so bad, but we'll see what that means when she is mobile again. Apparently, she had some bouts with loose stool today, and it's quite an ordeal to get her cleaned up. The third "big change" hit almost immediately when I walked in this afternoon, so of course, Ethan bolted. As the nurse and PCA wiped and repositioned (and wiped more), I helped to keep her calm and guarded her tube. She told me that she needed a tissue, which most likely resulted from feeling the feeding tube in her nose. I massaged her legs with baby lotion (mmmmm!), and continued when she nodded that she liked it. The best part of the night was when I told her, "Love you, love you, love you" (our little ritual), and she mouthed those same words back to me. I simply melted.
The doctors are pleased with Becca's progress today. She is breathing on her own, her sats are staying up, she's responding to our questions and trying to communicate, and she is calming herself after being disturbed by us. In addition, she is responding to the chemo. Her WBC went from 55 to somewhere in the 30s (don't remember exact number), but it looks like she's headed in the direction of tumor lysis. They have increased her fluids and given her Rasburicase to try to combat the syndrome, and the docs are watching her lab numbers for calcium, phosphorus, uric acid, creatinine, etc..
I'm so anxious to see what she says and does tomorrow!