Ground Hog Day

Lots more of the same as far as routine goes: lots of docs, lots of nurses, in and out, all day and night.  Becca is pretty medically high-maintenance, so one nice thing is that her nurses only have one other patient and she gets pretty reliably efficient care.  The nurses on this floor are very good at what they do and are very special people. It takes a certain personality to be able to cope with the stress that I am sure their positions come with while maintaining a compassionate and friendly stride.

Becca has been eating more. We now can add Oreo milkshakes, french fries and popsicles to her repertoire.  Never have we been so pleased by the exclusive consumption of junk foods.  As many of you know, her diet since her first diagnosis has not been, shall we say, "well rounded."

It is now about 9:30am, and while she did not receive morphine overnight, she is getting some now.  Her pain seems to migrate and she is now indicating that it is in her shoulder.

We are expecting the results today that will tell us more about her what direction we are going with regard to chemo.  Though we have not been told explicitly that if she does have some issue with the way her DNA breaks her odds decrease, that is certainly the feeling we get.

Seeing as though we are going to be inpatient for the the next four to six weeks, we have requested a different room that is larger and has blinds built in to the window on the door.  Some numb-nut decided that it was a hazard to put up anything that obscures the window.  The issue for us is not privacy or decoration... it is about light from the hallway.  Those of you that have spent some time here know how common it was to block that window and made it feel just a teeny little bit less attached to the hospital. So I have made it a point to whine and complain about it at every opportunity; nothing worse than a stressed-out parent with time on his hands.  EK


KniskernFan said...

There are rooms up on A6C with blinds built into the doors and windows. It is currently used as an "overflow" unit. Let us know if you get to move.


~anonymous~ ;)

Jeannette said...

Ethan.....just wanted to let you know that we are thinking of your family and praying for you all everyday. I was so saddened to hear the news. It just breaks my heart for your sweet little lady to be going through all this. Just wanted to let you know that we're thinking of you up here.
The Stidham's
Glen, Jeannette, JR, Marie, Henry & Will

Unknown said...

It is hard to read the posts but I greatly appreciate this way of keeping up to date. All of us are in your corner and each of you and all of Becca's caregivers are in my prayers. Don't stop asking for equipment and procedures that make this work better for all of you. I"m confident that so many parents are too "cowed" by the hospital atmosphere to even mention the things that would ease the experience. You all need every advantage that you can get. Love, Laurel