Lily and I on Christmas morning before opening presents.
Well, let's see... so much has happened in the past couple of months. I'll mix in the medical with non-medical happenings, since Mommy's referring to her calendar to write this.
Because Mommy, Lily, and I had cancelled our trip to Florida, and we still needed to get out of our house so that the hardwood refinishing company could work on our floors all week, we planned to go stay at Nana and Papa's house. Nanna B. offered to have us stay at her house, instead, with Poppa. We decided that this was a really good idea, for we don't get to see them very much and it would be so much fun to have them to ourselves. Needless to say, we really enjoyed spending the days with Nanna B. and the evenings with Poppa and Nanna B.! We swam and jumped on the trampoline at the gym, rollerskated, played with Nanna B.'s toys, and did arts and crafts. Later in the week, we headed up to Nana and Papa's house to stay, because we really missed Daddy and we wanted to do some things closer to home. On New Year's Eve, though, we went back to Kentucky to spend the night with Mason and Avery at Nanna B. and Poppa's house, which has become a tradition. They spoil us so much! We had a great time, but Lily started feeling really sick (she got the virus Mommy and I had).
The day after New Year's, our family explored the Coco Key indoor waterpark. Lily really liked it, but I didn't enjoy it very much. You see, I'm still in the stage where I don't like to be splashed in the face with water, and there were lots of sources of splashing going on there. Maybe when I get a little older?!
I got my Ariel (port) removed on 1.11.11! What a lucky day. Mommy and Daddy kept talking about this excitedly beforehand, but I didn't really understand that this meant surgery. We had to go in for a dexascan (to look at my bone density) at 8:45; however, the snow held us up a bit. Luckily, they were still able to get me in for the picture of my spine, then we headed straight up to the clinic. Mommy and Daddy met with a couple of neuropsychology doctors when we first got in our room. They asked lots of questions, and Daddy and Mommy answered as best as they could. It sounds like they are going to do a 1/2 day of testing in February, and they left us with lots of questionnaires to fill out and have my teachers complete. Following that, Dr. Absalon and Dr. George came in to look at me for my first post-chemo clinic visit. We will need to come back to the clinic once a month for 18 months, but at least they can draw my labs during the clinic visits rather than doing it the day before. Dr. Absalon said I looked great and he's happy with how I'm doing.
We rushed over to Same Day Surgery next to get ready for my port removal. I put on a little doggie-covered gown and the nurse practitioner asked me what I wanted to drink when I woke up. I was starving and really thirsty at this point, as I hadn't eaten since the night before, nor had anything to drink since 9am. My nurse was fabulous (Nurse Marcia), and the anesthesia team did a wonderful job of tricking me into inhaling bubble gum-flavored gas and calming my nervousness. When I woke up from the surgery, though, I was really mad! My chest hurt, I could see the scar (which I thought was blood), and there was a pokey in my forearm. I yelled at Mommy a lot and kept telling everyone how much I hurt. Daddy and Mommy first decided to try Tylenol, but then I didn't want to take it. The nurse offered Morphine, and they agreed to that since I was so obviously uncomfortable. After I ate and drank a bit, and they covered my scar with a BandAid, I was a little calmer and wanted to go home. Whew... what a long day!
The clear BandAid (dermabond) is flaking off of my scar now, so we're ready to try using BioOil on it to make the scar disappear. Let's hope that it works so that I don't need plastic surgery in the future. Nothing else major is going on this week... aside from Lily recovering from another bout of strep, LOTS of snow (and snow days!), and getting ready for the No More Chemo party this weekend. Lily and I are so excited to celebrate with friends, family, and medical professionals that have supported us throughout the 2+ years of my treatment. Pics and details coming soon!
Please keep up the prayers and good thoughts so that I can make it through the next five months without unplanned trips to the hospital. My immunity is still going to be suppressed for about six months after stopping chemo, but then I should be good to go. I will also, hopefully, have a growth spurt following that time period. If you haven't noticed, I'm a little small for my age, but that's due to the chemo.
Love, hugs, and good health to you all!
* Sorry about the spacing above! Mommy kept trying to fix it, but Daddy made her just let it go...