I didn't feel like eating, drinking, or doing much of anything. I just wanted to be rocked or left alone, and I fought to watch Charlotte's Web over and over all morning. Yelling, throwing things, hitting, and banging my head against my crib were the ways that I showed Mommy and Daddy how mad I was. I asked Mommy for milk, but she acted like she didn't hear me, and she didn't ever get me any.
Finally, around 11:30am, nurse Anna gave me a funny-tasting sippy cup of orange juice. I drank a little, but I was suspicious. For some reason, Mommy had ignored me all morning when I asked for milk, but then suddenly she let me have juice after about ten days of not allowing me to drink it. When I didn't finish the cup, Daddy gave me a different sippy cup of bug juice, but I was still wary of his motives, so I drank very little. Then Mommy and Daddy started getting mean, saying that if I didn't drink the juice, they would have to give me "medicine." Did they think I was that dumb?! I had seen them put the juice into syringes, so I knew it wasn't medicine.
Well, they struggled but got three syringes of yucky juice down my throat. At 1pm, we left for the radiology department to get my CT scan. We had to wait for a long time in that room with all of the animals painted on the walls and the big machine with a hole in the middle, and I eventually fell asleep. I woke up to Mommy lifting me onto a big long sheet-covered table, and an anesthesiologist messing with my PICC line. When I started to feel really dopey, they moved me up farther on the table, and then I felt something tight on my arm and a sharp pain in my hand. I tried to scream, but my voice sounded really warped, like I was under water. I kept screaming and crying when they did the same thing to my other hand and my foot.
I opened my eyes for a few seconds and noticed the looks of stunned disbelief on Mommy's and Daddy's faces. The anesthesiologist then asked how critical it was for them to do the contrast. I guess the deal was that they had me drink that yucky juice, which had contrast in it, and then they needed to put contrast into the peripheral IV they were trying to put in my hands and foot. He said if it was critical, they would need to put me under general anesthesia and intubate me. The anesthesiologist went to page the resident who was on call, and Daddy started to show his dissatisfaction. I didn't understand most of what he said, but he voiced his concern and said that he wanted to talk with Dr. Hummel (the attending) before we did anything.
It turned out that Dr. Hummel said we needed the contrast, so they were going to put me under and "tube" me. Daddy had some words with the anesthesiologist, but then he and Mommy had to leave so that I could go to sleep (at least that's what they told me). I don't remember anything else until waking up in the PACU with a really sore throat, raspy voice, and coughing.
Once the doctor brought Mommy and Daddy from the PACU waiting room, I was able to rock with Mommy for a little while, and I tried to tell her how horrible I felt. They finally let us go back to our room after a little while. I just wanted to be left alone to watch Charlotte's Web, but since I had diarrhea, Mommy kept changing my diaper. I didn't want to eat, either, although I tried a little warm milk (I told Daddy I wanted it that way).
I still had a fever, and I didn't want to take the Tylenol they needed to give me. Yes, they eventually got it in, but it wasn't pretty. The nurse also brought in this weird blanket for my bed. It had hoses on the end that hooked into a big machine, and water ran through it. She called it a "cooling blanket." It was pretty cold, and I ended up with waffle prints on my legs during the night, so I wasn't really digging the new blanket so much. My fever spiked several times over night, and I wound up having chills, too.
I have to say this is the worst Thanksgiving I have ever had. As a matter of fact, I kept hearing Mommy and Daddy say how much it "sucked," which I think means it was bad for them, too.
Mommy is a little worried that we only wrote depressing things, so she wanted me to mention some items for which we are thankful. Here goes... we are grateful for:
- E. B. White
- Baby Einstein DVDs
- high ANCs and platelets
- loving, supportive, and generous family members, friends, and neighbors
- the highly-skilled and caring team of doctors, nurses, and support staff here at Children's Hospital
I spiked a fever overnight Monday morning and they started me on another antibiotic called Gentamicin, so I was in solitary confinement (in my room) again on Monday. Boy, was I busy, though... I did lots of art projects (mixed media - paint, crayons, colored pencils, glue and noodles, buttons, etc.), built with blocks, worked puzzles, and played with the physical therapist and speech therapist. I also had fun dancing to some Laurie Berkner songs with Mommy (see the video below).
On Tuesday morning I rode to the clinic in my new green wagon (thanks, LaName!); I started fussing as soon as I saw where we were going, though. Aunt Renee was with us for a little while, but she didn't come into the OR with me. Deciding to stay in my wagon, I figured they couldn't hurt me too much. Little did I know that they would get me to go to sleep with that white stuff in my PICC line again. I suppose someone caught my head from flopping, because I luckily didn't have a bump on it when I woke up.
I got a new blanket (pink this time) over my PICC line, but my arm was pretty sore as I came out of the anesthesia. I heard the recovery room nurses say something about sending the BioPatch to be cultured. That is the doughnut-shaped circle that goes around my PICC line that has time release antimicrobial stuff in it. I guess there was some dried blood and greenish (ewwww!) discharge on it. They were also concerned about how tight the Coban wrap was around my PICC line site, because the skin under the Tegaderm (the huge plastic sticky sheet that seals in all of the important parts of my PICC line) was really red and irritated.
I'm guessing my lumbar puncture went well. All I know is that my back was a little sore, and I kept wanting to rub it. Unfortunately, the site was under my nightgown and diaper, so it was out of my reach. When we returned to the room, I tried to eat my Cheerios with milk, but several nurses were thwarting my best efforts at eating. Daddy asked them to go away for a little while so that I could eat (I hadn't eaten since the night before, and it was almost 11am), and they did.
Since we hadn't heard where my counts were and if the isolation orders had been lifted, we stayed in the room most of the day. I did more arts and crafts (I'm becoming quite the artiste), and I played with lots of different toys. The little tattoos of fishies and ladybugs that Mommy put on my fingernails were really cool, too! Beth, the music therapist intern, came by in the afternoon, and I really enjoyed her singing. I pretended to make soup when she gave me a pot with lid and spoon to bang, and singing brown bear, brown bear, what do you see? with her pictures was super fun. Nanna B. came to spend the night with me so that Mommy and Daddy could stay at our house with Lily. I'm kind of jealous (have I mentioned how much I miss our home?!), but I guess Lily misses Mommy and Daddy and our house, too; and I really like spending time with my Nanna B. I am named after her, you know...
No fever overnight, so the doctors pulled my Gentamicin and Fluconazole. Dr. Hummel told Mommy that he could only remove (or DC) one antibiotic each 24 hours, but if all went well, he would take away another one tomorrow. I also found out that we would get a four-hour "pass" to leave the hospital on Thanksgiving. Yippeee! Mommy and Nanna B. looked so excited, and they told me that I would get to go to Nanna B. and Poppa's to see Lily, Stanley, Charlie, Clyde, Mason, Avery, Aunt Renee, and Uncle Jon. It sounded good to me. I just had to make sure I didn't get a fever or have any hiccups...
Well, the hiccups happened today. Lily and I played dress up and then we went down to physical therapy with Gretchen and occupational therapy with Jill for about an hour. We had a great time... I pushed a doll baby in a stroller, colored on the chalkboard, climbed up and down some stairs, and even rode a bike. Lily enjoyed shooting hoops and swinging, while knocking down a tower of soft blocks. Both Lily and I got cranky as therapy ended, but it was nap time after all. We headed back to the room, and Lily left with Nanna B. as I was yelling at Mommy about something or another ( I can't remember why right now... there were so many things I was mad about today).
Mommy tried to get me down for a nap, but I didn't want to sleep. I didn't want to eat either, and I surely didn't want to have anyone take my vitals. I said I wanted to play in the play room, but when we went there, I kept telling Mommy, "NO!" She made lots of side comments that I needed a nap, but I knew something else was going on. I think the word many people used to describe me today was "irritable." Hmmm... whatever! I just felt terrible, and I didn't want anyone to touch me. I was getting a fever all day, so I screamed at Mommy, hit her, and I wouldn't eat or sleep. I even turned down birthday cake! When the nurse told Mommy that I had a fever, Mommy's eyes teared up. I think she realized that we weren't going to get to leave the hospital for Thanksgiving, and we surely weren't going to be discharged from the hospital this weekend, as she had hoped.
They took some blood to be cultured and gave me a dose of Tylenol around 7pm. The doctor also started me on AmBisome, rather than putting me back on Gentamicin and/or Fluconazole. The Tylenol didn't really work, so they gave me another (bigger) dose at 11:30pm. Dr. Baker came in and said they would be doing another CT scan in the morning. I guess I'll need some sleep...
Early Sunday morning, I ended up with a fever (the first since we've been in the hospital). The doctor told Mommy and Daddy that we wouldn't be leaving Tuesday, there would be no day pass on Sunday, and they would not be putting in my central line on Tuesday. Mommy and Daddy were pretty crushed. They decided to do some blood cultures and a stool culture, and now we just need to wait for the results. My ANC was 940, and my platelets were at 124,000, so the numbers weren't too bad.
I've had some leg pain over the past couple of days, so Dr. Absalon started me on a very small dose of Oxycodone. The pain isn't slowing me down, though. I have been dancing to Laurie Berkner songs, walking a little, cooking in the playroom kitchen, and doing lots of art projects.
As far as eating, I didn't feel like munching as much or as often as I have been, so I'm hoping my belly will shrink a little. It's kind of "out there," right now, which makes it difficult to get comfortable and move around. Building towers with the physical therapist (Gretchen) today forced me to twist and reach a little, which is exercise as far as I'm concerned. I even walked some today, starting with early this morning when I wanted to show Mommy the new nightgown and slippers I was wearing. Daddy and I surprised her by opening the bathroom door... luckily, she wasn't indisposed at the time.
My counts were pretty wacky today. I knew my ANC would go down a little because of the chemo, but it took a nose dive from 2080 yesterday to 400 today. My platelets were down a little (279,000) from yesterday's 334,000, and my hemoglobin tanked, too. Since they thought something was off with the numbers of several indicators, they took more blood to rerun the labs. My hemoglobin was even lower (7.8) with the new results, so they did a transfusion in the late afternoon. Blood always perks me up... maybe that's why I had so much energy in the evening, even though I didn't have a nap. Unfortunately, we didn't ever find out what my ANC was for the second set of labs, so we're looking forward to seeing that number tomorrow.
Mommy met with the geneticists today to answer some questions. They are going to try to figure out why my lactic acid level is so high. Once they get some blood and urine samples, they will analyze them and let us know within a few days if it is a metabolic problem or not. The "boss," Dr. Saul, told Mommy that he didn't think it was, but they would do the tests to rule it out.
Laura and Mommy took so many pictures today that Mommy had trouble deciding which ones to include on today's post. I didn't even want to stop to take a nap or go to bed, and finally around 10pm, after I had a giggling fit, Mommy turned out all the lights to make me go to sleep.
The CT scan was surely an experience. We got down to the radiology department promptly at 2pm, but I didn't get into the CT scan room for almost two hours. I was tired, and I actually had a fever (the first I've had since entering the hospital a month ago). The nurse sedated me and I fell asleep for about five minutes. I woke up with seatbelts wrapped around me on a table, and I was in a tunnel that moved around me. Amazingly enough, I didn't freak out. I watched for a little while, then closed my eyes occasionally, remaining quite still. Mommy carried me over to the recovery room after that, and I sucked down two apple juice boxes and four graham crackers.
Daddy, Mommy, the transport lady, and I rode a big alligator back up to the fifth floor. At that point, I made up for the twelve hours during which I couldn't eat. I insisted on McDonald's chicken nuggets, so Mommy made a run (she thought I deserved them after the day I had). Yogurt (Dora, Diego, and Spongebob), cereal, grilled cheese, chocolate, and a cupcake were also on the menu. As I was falling asleep, we got a surprise visit from Vicky (Mommy's friend from work) and Bob (Vicky's husband). They brought some wonderful surprises from Mommy's LECC friends (including a cute little tiger cub stuffed animal and cupcakes - see pics). As I've said before, we sure have some nice friends!
Oh, I almost forgot... Nana is having a blood drive at her work (Sibcy Cline) for me! That's nice. The flyer is above if you're interested.
My counts today: platelets - 334,000; ANC - 2080
Another celebratory cupcake (after all, NO MORE STEROIDS!)^
Nurse Kelly, Nurse Allie, and smiley Becca^
That sleepy medicine (Seroquel) they gave me last night sure worked! Daddy and Mommy were worried that I would wake up at 3am to eat, and I wasn't allowed any food or liquids (called an NPO) after midnight because of my procedures this morning. I actually slept until around 6:45, and I just quietly told Mommy that I wanted yogurt (and Dora cereal, and donuts, and milk...) over and over. I could have been much more demanding; I have a past history of firmly insisting.
Once we got back in the room, I made good on my vow to tear through the list of "to eat" foods.
At rounds, Mommy found out that my ANC was at 1290 and my platelets were at 411,000. She told Daddy that the doctors are still concerned about my lactic acid level, though. Normal is 0.7-2.1, and mine is still climbing (it was 7.7 today). Dr. Absalon explained that it is puzzling him, and he is planning to bring in the genetic team. I'm certainly not working out much (I have trouble even standing and walking), and they say I don't have sepsis. Anyway, it looks like I'm going to have a CT scan tomorrow. I don't know what it is, but it sounds pretty cool.
Mommy left for a little while today (I heard she was going to see Aunt LeAnne to get a haircut), so Laura and Daddy took me to one of the therapy rooms. I wasn't happy about it, but they got me standing and walking a little. As you can see in the pics above, I colored on the chalkboard. For my speech therapy today, I sang and danced to Laurie Berkner songs with Daddy. At least I'm stretching my legs a little. Maybe I'll lose this extra poundage soon.
Mommy finally came back, bringing McDonald's chicken nuggets. I was in Heaven! After eating those, and the new chocolate rectangles she surprised me with, I was wiped out. I drifted off to sleep with a full tummy early...
<--Laura sure is my friend... she drove all the way to McDonald's at my request, just to get me McNuggets. I ate all ten of them then asked for fries.
We had some visitors with familiar faces this morning. John (who used to work with Mommy) and Joan (his wife), as well as Kate, with whom I'm actually beginning to interact. John brought something really nice from the high school faculty, and Kate gave me some super cute hats from a few LIS/LMS teachers. I tell you... Mommy sure works with wonderful and caring people. No wonder she's been in Loveland for almost thirteen years.
Mommy, Kate, and I took a walk to show off one of my new hats, and we saw 'Nise while we were out and about. She brought me some warm, fuzzy hats she had made, as well as a scarf and a few bandannas. I'm going to be the most stylin' bald headed girl around here!
'Nise made a dinnertime run to McDonald's for some chicken nuggets and French fries for me (see pic above). They really hit the spot! I actually inhaled six nuggets at dinner, and I ate the other four right before bed. Among the other great things 'Nise did for me this weekend, she also gave blood, which was no small feat. I heard the story of how she passed out twice that day. Mommy told her not to do it anymore. I think she must need her blood more than me, but it was so nice of her to give it.
Today's counts: ANC - 860; platelets - 252,000
A little later in the morning, my left hand really started hurting. Every time nurse Kimberly put something in (medicines or fluids) through my IV, it burned. I screamed to let her and my mommy know how much it hurt me. The nurse said that the IV in my hand had gone bad, which was typical after a few days, but probably more so because of the antibiotics I was getting.
Dr. Perentesis told us that a new PICC line could be put in, since the other PICC line had been taken out several days prior to this. It would be on my left arm instead of my right arm. Poor 'Nise! She spent so much time modifying all of my nightgowns and jammies for my PICC on the right side! Maybe I'll just wear the outfits inside out or backwards.
Oh, I almost forgot... my ANC was at 1620 today, and my platelets were at 181,000 (normal is 135,000-466,000). My body is doing a great job right now, so let's hope it continues. I would love to go home soon. I keep telling everyone, "I go Mommy's house!"
Mommy, Nana, and the nurses tricked me! They took me on a ride in my wagon, but it was all a setup. We ended up in radiology, and the people inside the room were wearing masks, so I knew something was up. Placing the PICC line this time didn't seem as easy as it was the first time, but that might have been because I knew what was going on. I think I bled a little more this time, too. From what the nurse said that night as she hooked me up to my IV pole, they had gotten a "good line." Even though the whole experience was nerve wracking and traumatic, at least they can now give me medicines and take my blood through the PICC line without me feeling everything. It was SO worth the pain!
This was me in September (pre-Lukemia diagnosis). Mommy, Daddy, Laura, and I were watching some videos of Lily and me on the computer this morning, and this was my favorite. I wanted to remind people that I really am cute.
I think something is wrong with my internal clock. I keep waking up at 4 am and going to bed between 5:30 and 6:30 pm. Oh, I really miss the uninterrupted sleep I used to get at home. Hopefully I'll get to have restful nights and naptimes again soon.
Since I had gotten up so early, I didn't want to go out for rounds this morning, but I heard Mommy and Daddy say how much they thought things "sucked" when they came back in. I guess they got some good news... my ANC was up to 1780. WOW! That's the highest it's been since I've known I even had an ANC. The bad news was that they found out we would be in the hospital for a minimum of ten more days. The antibiotic they put me on for the bacteria in my blood needs to run the full course (ten days) via IV. That means we will surely be in here until at least the week of Thanksgiving. One of the nurses said there are always hiccups. I'm wondering what hiccups have to do with any of this...
I liked having Laura in the hospital with me today! She's really nice and funny, and it's great to have another person jumping through hoops every time I change my mind. I think I might go easier on her (and everyone) once I'm finished with these steroids. Only three more days - yippee!
Mommy and Daddy keep telling me about all of the nice things that our friends, neighbors, and relatives are doing for us. You have been so kind, thoughtful, and supportive, and we really appreciate it! Mommy has been terrible about sending thank you notes (she's been kind of busy taking care of me and taking dictation from me for this blog), but she wanted you to know that we are all very thankful for the big and little things you have done to help us out. When we see some of the other patients here without the support systems we have, we feel even more blessed.
Everyone is continuing to ask what we need. You want to know what we need the most? Thoughts and prayers for my counts to continue climbing, the bacterial infection to clear up, and our family to be back together in our own home - that's what we need. Cupcakes would be nice, too... :o)
We got some bad news this morning. My blood culture turned up some bacteria. The doctors were worried that my PICC line could be harboring some bacteria, and their plan was to remove it, test it, and give me a different PICC line.
After rounds, though, the resident came in to let Mommy and me know that they weren't going to put another PICC line in yet. They were going to put an IV back in my hand (like when we first entered the hospital) and pull my PICC out. Mommy wasn't very happy about it, and after the removal of the PICC and the insertion of the IV in my hand tonight, I know why.
The paddle I'm wearing on my left hand is supposed to be temporary. I need to wear it until I get another PICC line or my central line. For either of these to happen, though, my bacterial infection needs to be cleared up. So, the bottom line is that we will be in the hospital until at least the end of next week... and Daddy, Mommy, and I were so encouraged by my counts today. My ANC went up to 440 today, and my platelet count was actually in the normal range. Dr. Parentesis reiterated the fact that I have gone into a nice remission, but I still am stuck here.
I sure liked having my new friend Laura at the hospital with Mommy and me today. She's funny and sweet, and I'm teaching her lots about how to interact with me. And she thinks she is a good trainer...
On a side note, I wanted to pass along a special "thank you" to Two Tomatoes Records. They are the company that produces the Laurie Berkner Band CDs and DVDs. Daddy sent an email message to them yesterday, asking for donations of Laurie Berkner music for Children's Hospital (specifically, the Hem/Onc floor). Daddy received an email back that said they would be happy to send some CDs and DVDs, and we're really excited that more kids will be able to get some joy from the band's wonderful music. Thanks, Laurie, Ryan, and Susie (and Corinne)!
Mommy and Nanna B. tried to get me to play and to go down to occupational therapy with Jill, but I just wasn't interested. Gretchen, the physical therapist, also attempted to rouse me, but we never were able to connect. Maybe tomorrow...
I fell asleep at 5:30 tonight, since I hadn't taken a nap and had been awake since 4am. I did wake up and see my new nanny's smiling face for about 30 seconds before I drifted off for the rest of the night. I can't wait to meet her tomorrow!
Good news! My ANC was up to 510 this morning. Yippeeeee! If only it would stay up after my chemo (Vincristine) today. You never know... maybe my bone marrow will kick into overdrive.
I was really irritable all day, and screamed "OWWWW!" whenever someone new walked in the room (especially if he/she was wearing a white coat). I didn't want to play or be touched at all, and Mommy thought that maybe my skin was just really sensitive. She met with the "pain doctors" to see if there was something that could make me a little more comfortable. After their assessment, they concluded that I wasn't in pain, but I was really irritable (duh, I could have told them that). They said that many patients on steroids have this irritability, and they decided that they would start me on a medicine called Clonidine. It is typically used to treat people with hypertension, but in lower doses, it can help with irritability. If it works, Mommy says she wants some, too!
Unfortunately, I didn't have any procedures scheduled in the OR, so I had to have my PICC line dressing change in the room while I was awake. Brandi from Child Life and Brian and Beth, the music therapists, came in to help with some distraction. I screamed and cried a lot, but Mommy and Daddy said they thought it went a lot better with the additional distractions in the room. Music surely does make everything better. They had some cool ocean drums and a tongue drum, as well as their guitars. Those drums really sounded like the surf rolling in and out (I know, because I remember going to the beach with Nana and Papa last summer).
Since we aren't likely to be discharged from the hospital this week, my new nanny (Laura) didn't drive here today. She is going to leave early tomorrow morning and come to the hospital to see me. I can't wait to meet her; I think we're going to be good friends.
Ahhh, what a great night of sleep! I think Mommy's going to make sure I get that Benadryl stuff every night.
My ANC was down to 40 today, and I know that it's going the wrong way. My body's really trying to create healthy cells, but they keep giving me chemo. How do they expect my counts to go up when they are killing off everything?
All I wanted to do today was eat and take walks or rides (translation: Mommy or Daddy carried me or pushed me in my fancy little car). I took my eating very seriously, and when I wasn't eating, I was thinking about eating. My clothes are shrinking like crazy (of course, everyone is telling me that I'm getting heavy), and my face is as round as a ball. Mommy is worried that I'm going to burst (that's what I keep hearing her say, anyway). I also keep seeing lots of hair on my pillowcase when I sit up, and some of my hair is getting stuck on my clothes and my PICC line dressing. I'm wearing my bows as long as I can, though...
Let's see... who visited today? I saw Nana for a long time, my mommy's Aunt Mary and Uncle Bill, and 'Nise. I wasn't the best hostess (grunting and scowling, and all), but can you blame me?
My ANC was only up to 70 today, but it was zero yesterday, so I guess it's an improvement anyway. In order to go home, though, I need an ANC of around 500. To start my next round of treatment on the 18th, my ANC has to be greater than 1,000. Wow... I've got a long way to go.
One more bit of news... Mommy and Daddy have a nanny lined up. I won't be able to go back to school (there are lots of germs and sicknesses floating around), so in-home care is the way to go for now. Laura currently lives in North Carolina, but she'll be coming in to town next Tuesday night. I'm so excited that she is going to join our family, and I can't wait to meet her!
After a very short nap today, I danced with Mommy and Allie (my favorite nurse) to "Move It, Move It" some more, and I played with Lisa, the speech therapist, for a while. She was amazed that I know all of my letters and colors already, but I've actually known them for a long time. I guess she comes around to play with me so I don't lose some of the things I learned before I came into the hospital. She said she also wants me to learn some new things, too. I have learned some new words: leukemia, blood, white blood cells... I could go on and on.
Dr. Burns and Mommy talked this afternoon, and they decided it might be good to go ahead and give me some blood tonight. I guess I have a flow murmur right now, which is not a big deal, according to the doctor. I'm hoping to have lots of energy tomorrow. I know Mommy wants me to go to the play room with her, and the massage therapist is stopping by, as well. I could go for a massage right now! Maybe my ANC will bounce back a little tomorrow, too...
Lily, Nanna B., and Poppa dropped in this morning. It was so nice to see Lily! She told me about her trick-or-treating and her new kitten at Nanna B's house. Though I wasn't very nice to my big sister, she did a great job of sharing and not fighting back when I tried to start things. Mommy took her to school, and Daddy stayed with me.
Daddy and I saw all of those cheese puffs I had eaten again. They came up while Mommy was gone. Why do I keep throwing up when she is not here at the hospital?
Daddy was super-busy on a crusade this morning. He was working diligently to make sure that my PICC line dressing would be changed while I am under anesthesia for my procedure tomorrow. He and Mommy had implored many people during the last week to make sure we didn't have to go through the trauma of PICC line dressing changes in my room (without anesthesia), but it had gone nowhere until today.
By the time Mommy got back, Daddy had talked to everyone he had seen this morning (our nurse, the PCA, the nurse manager, someone from Child Life, the doctors, the residents, and even housekeeping) about it. A patient/family advocate from family relations stopped in right as Mommy walked in the door, and she sat down to talk with Daddy and Mommy. She got some details, left to talk with the nurse in charge of the OR, and came back with the news that they would change my PICC line dressing tomorrow during my procedure. Daddy is my hero! I was SO dreading Thursday, but now I don't need to.
The nurse also started giving me platelets while Mommy was gone. The doctors this morning said that my levels were getting close to being low. With my bone marrow aspiration scheduled for tomorrow, the new platelets would help me to not bleed too much in the OR.
I went outside today! There is a play deck on the roof of the 4th floor, between the A tower and the B tower. Someone swiped us through, and Daddy, Mommy, and I took a ride over to the play deck. All kinds of play equipment is included on the rooftop, and I was really excited at first. I went down the slide and into the playhouse (see pic above), but then I was done.
'Nise and Mr. Tim came to my room right before bedtime. I hadn't seen Mr. Tim in a long time, so it was nice to lay eyes on him again. They stayed to talk for a little while with Mommy and Daddy, but I wasn't feeling too social. I finally told them I was tired, and I think they got the hint, because they turned out the lights and 'Nise and Mr. Tim left.